Skin Disease-Specific Sites

Acne

• AcneNet is the first section of DermInfoNet, sponsored by the American Academy of Dermatology (ADD).

Albinism

• NOAH (National Organization for Albinism and Hypopigmentation)

Allergy

• Allergy, Asthma & Immunology Online (ACAAI) is an information and news service.
• American Academy of Allergy, Asthma, & Immunology (AAAAI) Online has information both for physicians (upcoming meetings, continuing medical education [CME], available audiotapes) and for patients (asthma, sinusitis, and common allergies).
• The National Institute of Allergy & Infectious Diseases has information about clinical trials and some patient information.
• The Food Allergy & Anaphylaxis Network goals are to increase public awareness of food allergies and anaphylaxis, to provide education, and to advance research on behalf of those affected by food allergies.
• National Jewish Medical and Research Center web site has a useful MedFacts section with information on allergic and immunologic diseases.
• Fragranced Products Information Network is a grass roots effort to educate the public about the chemicals used in and the health effects of fragranced products.
• National Institute for Occupational Safety & Health (NIOSH) Alert, "Preventing allergic reactions to natural rubber latex in the workplace."

Alopecia areata

• National Alopecia Areata Foundation

Ataxia telangiectasia

• Ataxia-Telangiectasia Children's Project

Beh็et disease

• The American Beh็et's Disease Association

Birthmarks

• Vascular Birthmarks Foundation

Congenital moles (nevi or nevus)

• Nevus Network

Dermatitis herpetiformis

• Gluten Intolerance Group

Ectodermal dysplasias

• National Foundation for Ectodermal Dysplasias

Eczema

• National Eczema Association

Ehlers-Danlos syndrome

• Ehlers-Danlos National Foundation

Epidermolysis bullosa

• Dystrophic Epidermolysis Bullosa Research Association of America

Herpes

• Novartis has a pharmaceutically sponsored web site for physicians and their patients with genital herpes.
• Glaxo has sponsored HerpesWeb, an informative site for patients and physicians, on its herpes web site.
• The International Herpes Alliance web site in Europe has excellent information regarding herpes, including advice on how to tell someone you care about that you have herpes.
• The International Herpes Management Forum has treatment guidelines for physicians including herpes in pregnancy and herpes in HIV infection.

Hereditary hemorrhagic telangiectasia (Osler-Weber-Rendu Syndrome)

• Hereditary Hemorrhagic Telangiectasia Foundation

Hyperhidrosis

• This site is an Italian doctor's summary of hyperhidrosis, complete with conventional and nonconventional treatment.

Ichthyosis and related disorders

• Foundation for Ichthyosis & Related Skin Types

Incontinentia pigmenti

• National Incontinentia Pigmenti Foundation

Leprosy

• World Health Organization's site about leprosy

Itch

• International Forum for the Study of Itch is an international forum for the study of and living with itch.

Lupus

• Lupus Foundation of America web page includes discussion groups, tests, and treatment options.

Melanoma

• A melanoma instruction course from the Virtual Lecture Hall offers continuing medical education (CME) credit for primary care physicians.
• OncoLink's pages about melanoma include an atlas, many articles, and links about melanoma for patients and health professionals.
• Melanoma Research Project is an informative site based in Germany.
• Melanoma Patients' Information Page contains lots of helpful information including a prognostic calculator.
• University of Pittsburgh Cancer Institute lists its clinical trials for melanoma.
• The Cancer Control Journal has an informative issue on melanoma (Moffitt Cancer Center and Research Institute).
• Sydney Melanoma Unit, Melanoma Foundation & MASCRI (Melanoma Skin Cancer Research Institute)
• Dr. Huntley's melanoma course for medical students at the University of California at Davis includes many high-quality images. The linked site You Can Be An Expert At Diagnosing Melanoma presents the important features to allow anyone to learn when to suspect a melanoma.
• National Cancer Institute's CancerNet Physician Data Query (PDQ) melanoma information service
• The Melanoma Research Foundation is a nonprofit organization dedicated to finding a cure for melanoma.
• Canadian Melanoma Foundation
• The Johns Hopkins Oncology Center Melanoma & Cutaneous Oncology Clinic
• The M.D. Anderson OncoLog (University of Texas) site includes a description of sentinel lymph node mapping.
• Melanoma in pregnancy, a case report and debate of treatment published in the British Medical Journal

Neurofibromatosis

• The (US) National Neurofibromatosis Foundation Inc. includes links to international organizations.

Parasites

• Atlas of Medical Parasitology from the University of Torino, Italy
• Headlice.org is the web site for the National Pediculosis Association.
• Headlice information from the Laboratory of Public Health Entomology at Harvard
• Parasites and parasitologic resources from Ohio State University
• Veterinary Parasitology from Oklahoma State University

 

Pityriasis rubra pilaris

• PRP Support Group

Pseudoxanthoma elasticum

• National Association for Pseudoxanthoma Elasticum

Porphyria

• American Porphyria Foundation offers dietary guidelines, pictures, and FAQs (frequently asked questions) for a donation.

Psoriasis

• National Psoriasis Foundation has comprehensive information about psoriasis for physicians and patients.
• The Skin Page provides searches within newsgroups and other databases, with a focus on psoriasis support and self-help.

Rare diseases

• National Organization for Rare Disorders

Rosacea

• National Rosacea Society

Scleroderma

• Scleroderma Foundation provides FAQs and support group information.

Sjögren syndrome

• Sjögren's Syndrome Foundation

Skin cancer

• The Skin Cancer Foundation

Sturge-Weber syndrome

• The Sturge-Weber Foundation

Tuberous sclerosis

• Tuberous Sclerosis Alliance

Vitiligo

• National Vitiligo Foundation

Xeroderma pigmentosa

• Xeroderma Pigmentosa Society